On DVD: TO THE EDGE OF THE SKY

New to DVD this week:
TO THE EDGE OF THE SKY

Directors:
Jedd Wider and Todd Wider

Premiere:
Stony Brook 2017

Select Festivals:
Woodstock, Napa Valley

About:
Parents become activists to access the experimental drug that might save their sons’ lives.

Duchenne muscular dystrophy is a degenerative genetic disorder that affects approximately 1 in 5000 boys, and is typically terminal by the mid-20s. The Wider brothers’ film profiles four boys with DMD – Charley, 12; Austin, 14; Jett, 18; and Aiden, 9 – and, just as importantly, their families, led by their fierce mothers. When the latter learn of a new drug with the potential to extend their sons’ lives, they are disheartened to learn the only way to gain access is as part of a very small clinical trial, and one that is not open to sufferers whose disease has progressed too far already. While this is standard operating procedure for the FDA to test a new drug safely before releasing it to the public, the boys’ mothers argue that there is life-threatening urgency that should bypass normal protocols. The film follows their efforts to mobilize a grassroots movement to force the FDA to fast-track access, even if there are risks. The film is unfortunately overlong, including one or two subjects too many, but generally succeeds as an ultimately hopeful, though often angry, David vs Goliath call-to-action profile.

Advertisements

Leave a comment

Filed under Documentary, Film, Releases

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.